A mother came to my OPD last month with a nine-year-old who had been getting headaches for a year. She had already seen an eye specialist, a dentist, an ENT surgeon and a physician. She had two MRI scans. Nobody had ever taken a proper headache history.
She had done everything right by her own reckoning â she kept going until someone helped. What she had not been given was the thing that would have saved her a year: a clear idea of who does what.
That is what this article is for.
Start with the paediatrician
For almost every childhood neurological symptom, the paediatrician is the correct first stop. Not because they are a lesser option, but because they are the right one.
A good paediatrician will recognise most common problems, treat them, and â importantly â know when the pattern does not fit. They know your child's growth history, immunisations, past illnesses and family background. A specialist meeting your child for the first time has none of that.
Going straight to a specialist is not a shortcut. It usually means starting with a stranger who has to reconstruct everything the paediatrician already knows.
See the paediatrician first for: headaches, one-off faints, clumsiness, delayed milestones, behaviour concerns, poor school performance, febrile convulsions in a young child, and almost any "something is not quite right" worry.
What a paediatric neurologist does
A neurologist is a physician who specialises in the brain, spinal cord, nerves and muscles â and treats with medication, not surgery.
This is the specialist most children with neurological problems actually need. Epilepsy, migraine, cerebral palsy, muscle disorders, movement disorders, unexplained weakness or numbness, regression of skills â these are all managed medically, often for years, with no surgeon involved at any point.
See a neurologist for: seizures or suspected seizures, recurrent headaches that are not settling, unexplained weakness, loss of previously acquired skills, abnormal movements, muscle weakness or unusual tiredness on walking, and any child whose paediatrician suggests a neurological opinion.
What a neurosurgeon does
A neurosurgeon operates on the brain, spine and nerves. That is the defining difference, and it explains why most children never need one.
But there is a second role that families rarely know about, and it is the one that brings most children to my clinic: deciding whether surgery is needed at all. A large part of my week is telling families their child does not need an operation. That answer is worth as much as the operation, and it needs a surgeon to give it credibly.
See a neurosurgeon for: a head injury with warning signs, a scan showing a tumour, cyst, hydrocephalus or vascular abnormality, a spinal problem causing weakness or bladder symptoms, an abnormally growing head in an infant, a suspected spinal cord tethering, or a second opinion when surgery has been advised elsewhere.
For scans and second opinions you do not need a referral. Bring the films, not just the report.
The two specialists parents most often miss
Developmental paediatrician. For autism, ADHD, global developmental delay, learning difficulty and behavioural concerns. Many families cycle through neurologists and psychiatrists when this is the specialist they needed. If the concern is how a child is developing rather than a discrete neurological event, this is where to go.
Paediatric neuropsychologist. For structured assessment of attention, memory, processing and learning. Often the missing piece for a child who is bright but struggling in school, and the assessment that finally explains why.
Therapists â and why the sequence matters
Occupational therapists, speech and language therapists and physiotherapists deliver most of the treatment in child development. They are not lesser professionals; in many conditions they do more for the child than any doctor does.
But the sequence matters. A child with unexplained regression needs a diagnosis before a therapy plan. Starting therapy without one occasionally delays finding a treatable cause. Get the assessment, then start therapy, and start it promptly â waiting for a perfect diagnosis before beginning is its own mistake.
Symptom by symptom
Headache â paediatrician first. If frequent, disabling, or with warning signs â neurologist. Neurosurgeon only if a scan shows something structural.
Seizure or fit â emergency department if it is happening now or lasted over 5 minutes. Otherwise paediatrician, then neurologist. Bring a phone video if anyone recorded it â it is more useful than any test.
Not talking at the expected age â hearing test first, always. Then speech therapist and developmental paediatrician.
Not walking by 18 months, or lost skills once gained â paediatrician urgently, then neurologist. Loss of skills a child already had is never something to wait out.
Head injury â the warning signs decide it, not the specialty. See our guide on head injury in children.
Clumsiness, frequent falls, tiring quickly on walking â paediatrician, then neurologist. Often dismissed as "he's just clumsy" for years.
Poor concentration, falling grades â developmental paediatrician or neuropsychologist. Rarely a neurologist, unless there are blank staring spells â which can be absence seizures and do need one.
Head growing too fast in an infant â paediatrician immediately, then neurosurgeon. This is one of the few genuinely time-sensitive items on this list.
Four practical things
Ask why, not just what. If a scan is advised, ask what it is looking for. If surgery is advised, ask what happens without it, and what the alternatives are. A doctor confident in the plan will answer both easily.
Second opinions are normal. Nobody who recommends surgery on a child should be offended by a family wanting another view. If someone is, that itself is information.
Bring the actual images. Films or the CD, not only the report. Radiology reports are written for doctors and vary in detail; the images do not.
Keep one file. Every report, prescription and discharge summary in date order, in one folder. Families who bring this get better consultations than families who bring a phone full of photographs.
The honest summary
Most children with neurological symptoms need a paediatrician and, sometimes, a neurologist. A minority need a developmental paediatrician or therapist. A small number need a neurosurgeon â and of those who see one, many leave being told they do not need surgery.
If you are unsure where to start, start with your paediatrician and say plainly: "I am worried about this. Who should we see?" A good doctor will tell you, and will not be offended by the question.
Written by Dr. P. K. Jha, MBBS, MS, MNAMS, M.Ch (Neurosurgery, AIIMS New Delhi), DMC Reg 13809. Consultant Neurosurgeon with over 30 years treating brain and spine patients. Practising at Neuro Care India, Gaur City 1, Greater Noida.
This article is educational and is not a substitute for a clinical consultation.